Why it’s hard to be chronically ill And spontaneous: Or the consequences of not planning #myspoons
You look like a new person- hi there! Thanks for reading. This site is where I vent about having an invisible disability as well as cancer. Please consider sharing this post because it’s really helpful in my shift to a writing career. Welcome back! Please tell share this post or consider buying me a cup of coffee because it will help me continue to pay bills while I shift to a part time writing career.Today on the Days of our Spoons… Coping with inadequate spoons. If you’ve read the Spoon Theory, you know one of the important ways it talks about having an invisible illness is in communicating how we deal with having limited energy. Pre-disclosure I’ve lost a lot of friends and career opportunities because I was too proud to say “I’m struggling with a disability.” In fact in years past, due to my own latent ableism, I thought of myself as someone who wasn’t disabled. In my mind I thought the space between having a short term injury and a visible disability that included a wheelchair or obvious tell was to be overcome by hard work. Understanding the lives of disabled people helped me live happier. Partly from American culture and partly from my immigrant and African background, I somehow got it into my head that people who occupied that space and didn’t “tough it out” were lazy or entitled, not physically or emotionally unable. The turning point for me was in talking to people with varying levels
