#MySpoons and having energy to do things
You look like a new person- hi there! Thanks for reading. This site is where I vent about having an invisible disability as well as cancer. Please consider sharing this post because it’s really helpful in my shift to a writing career. Welcome back! Please tell share this post or consider buying me a cup of coffee because it will help me continue to pay bills while I shift to a part time writing career.It’s hard out here for a spoonie. Because of Painsomnia, sleep is a struggle. Yes, we’ve turned off our devices. Why did you see me tweeting at 2 am? Because after two hours of lying in pitch black agony, I got fed up with trying to sleep, and got out of bed. Helps avoid mentally associating my bed with sleepless agony, at least a little. And every little bit counts. I was also either venting about my sleeplessness, which also helps distract from the pain, or consoling a fellow spoonie who is having repeating thoughts or is asking for distraction while thoughts of suicide pass. Yes the pain is that bed. Yes we’ve been to the doctor. No, not only can’t we get more pain medicine, our meds have been reduced because of the opioid crisis. Yes, even though the crisis is getting worse, our prescription medication that we rely on to have a normal life and are not addicted to are still extra-restricted. No, medical marijuana is not legal in Texas. So, having said all